How Can You Help
Every action, no matter how small, helps bring awareness to persistent unexplained odor conditions. Whether you share your story, participate in our survey, contact a research institution, volunteer your time, or sign our petition, you are helping us build awareness, support research, and give a voice to those affected. One of the simplest ways to help is by sharing our stories, videos, website, and social media content, and by completing the forms below. Every action helps bring greater awareness and understanding to persistent unexplained odor conditions.
Sign the Petition
Many people living with persistent unexplained odor conditions struggle to find answers, support, and understanding. By signing our petition, you help show that this issue affects real people and deserves greater awareness, research, and attention.
Participate in the Community Survey
If you are someone who is living with or experiencing persistent unexplained odor conditions, this survey is for you. It helps us collect information about symptoms, experiences, quality of life, medical journeys, and the impact these conditions have on daily living.
Your responses may help identify patterns and support future advocacy and research efforts.
Volunteer
We are looking for volunteers who want to help with awareness, storytelling, editing, outreach, social media, website support, and other community efforts.
Contact Research Institutions
One way you can help is by sending a letter to research institutions and universities. Your voice can help raise awareness and encourage further investigation into these often overlooked conditions.
You can send letters to organizations such as the Monell Chemical Senses Center, University of Pennsylvania, Harvard Medical School, Stanford University School of Medicine, Yale School of Medicine, the Mayo Clinic Research Center, and Cleveland Clinic Research Institute.
Every letter helps bring greater visibility to a condition that many people continue to struggle with in silence.
Share Your Story
Your story can help others better understand the challenges of living with a persistent unexplained odor condition. With your permission, stories may be transformed into awareness content using AI storytelling tools while protecting your privacy. Names, faces, and identifying details can be kept confidential based on your preferences.